What is P.O.T.S?
well I am glad you asked... P.O.T.S. stands for Postural Orthostatic Tachycardia Syndrome. It is a form of autonomic nervous system dysfunction. Some symptoms are: rapid heart rate, changes in BP, lightheadedness, fainting, dizziness, chest pain, shortness of breath, among many others.
http://www.dysautonomiainternational.org/page.php?ID=30
What is E.D.S.?
Ehlers Danlos Syndromes are a group of rare inherited conditions that effect connective tissue. I have HEDS. Connective tissue supports skin, tendons, ligaments, bones, organs, and blood vessels. Some symptoms are: hypermobility, dislocations, easy bruising, body aches, among many others.
https://www.webmd.com/a-to-z-guides/ehlers-danlos-syndrome-facts#1
Let's get back to the judgment of others. It is very easy to judge someone without knowing the battles they face everyday. Everyone is battling something. Some things are more visible than others but it does not mean the invisible battles are not present. For some like myself we look perfectly fine on the outside but on the inside it's a whole different story. It may be hard to believe when someone doesn't "look sick" Does sickness really have just one look? I think sickness looks different to everyone. Each person has a different perspective of the look of sickness. Maybe to one its being pale, or overweight, under weight, or loosing hair, or in a wheel chair. Sickness does not have one look. There could be things you can not see or a person having feelings you can not see. There are many ways to be sick. It is not all cut and dry. On days when I feel my worst that is when I try to make myself look my best. Just because someone does not look sick does not mean they are not sick. Who are we to judge someone and define what sickness looks like?

Am I asking for people to talk because I push myself so hard? I force myself to put on my best smile and push through the debilitating symptoms when I am out and about. I refuse to seem weak. Those closest to me have seen my struggles. Others see what I allow them to see. I was just in the hospital but chose to not post anything about my scare. I refuse to give this illness anymore merit than it is worth. I have shared my story and health issues only to be bashed by others with the same illness. I must be faking because they can't do what I can. Truth is symptoms affect us all differently. We all fight differently. Some may not have a heart rate as fast I do, but have to use a wheel chair to get around. We are all in this together. It is not a competition to see who is sicker. For me, part of how I deal with the life changing illness I got is to fight harder than I ever have. I am very stubborn ( sometimes too much so) and though some days I can barely get out of bed I refuse to let an illness define me or control who I am! I was in a place where I forced myself to do way too much in order to prove myself worthy. I pushed myself to the point of passing out just so I wouldn't seem sick or weak. I have learned that it is not worth trying to prove yourself to others and no matter what you can or cannot do you are worthy and worth it and amazing.
I have POTS which was most likely brought on due to a Lyme battle I had years back. I had lyme so bad I lost the ability to walk. I have since recovered but do have some lingering overlap symptoms. With POTS I have a very fast heart rate upon standing, I get a dangerously low heart rate at rest, I get frequent headaches, I have passed out, I am dizzy a lot, I feel light headed, My pupils dilate on and off affecting my vision, I get chest pain, I feel like I never get enough oxygen, I get palpitations, my heart misses beats, and I am exercise intolerant. Thing that seem simple like cooking, going shopping, or taking a shower cause my heart rate to spike. I have great difficulty in many tasks that would seem so simple to you. I also have HEDS that is hereditary. I have always been hyper mobile, and had frequent broken bones and dislocations. Being bendy was my party trick. Now I suffer from joint pain and neck instability. I bruise like a peach and am unable to do much of the things I used to for fear of breaking something. I broke both my sesamoid bones from going for a walk and my pinky from combing through my hair, just to name a few. I also suffer from migraines and have endometriosis. I have a benign brain tumor that I have to get an MRI every year to check for growth. Even though benign if it grew it would cause me vision issues. I face these struggles daily. This is part of me. Am I sharing because I want sympathy? NO! I am sharing to prove a point things are not always what they seem. It is easy to judge not knowing the facts. I am doing my best just like so many others with illnesses you can not see. It is already hard enough to deal with never mind adding the judgement of others.
Here is what you see:


Here is what you don't see:
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| I.V. medications to get heart rate down after a silent heart attack |
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| unable to stand without fainting |
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| heart rate standing to sitting to back to standing |
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| name that activity? This was my sitting in the shower heart rate. |
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| resting heart rate while being in the hospital recently |
It is very easy to pass judgement upon things you do not know or see. I myself am guilty of it. Let's do better and be more understanding to the battles of others seen or unseen.
I hope this post will inspire others to judge less and support more. We should be lifting others up. You never know what someone is facing. Just be kind. Til next time!
xoxoxo
























































